Networking

Network Update

Sharing the work of others: EP Magazine’s Annual Healthcare Issue on disability-aware healthcare, and the CCHS Network’s 2025 call for research proposals.

April 1, 2025IVUNVol. 39, No. 1 (Spring 2025)
Back to Articles

Spotlight on EP Magazine’s Annual Healthcare Issue

This quarter’s Exceptional Parent (EP) Magazine offers valuable insights into the real-world healthcare experiences of individuals with disabilities and their families. The Annual Healthcare Issue dives into the challenges many face when accessing essential services — from routine medical and dental appointments to navigating emergency care and hospital policies.

With a focus on practical advice and lived experience, this issue highlights the importance of disability-aware healthcare systems and better training for providers. For individuals with neuromuscular disorders who use home mechanical ventilation, these stories and strategies may offer both reassurance and tools for advocacy.

Check out EP Magazine’s Annual Healthcare Issue to stay connected and informed on the evolving landscape of disability and healthcare.

Call for CCHS Research Proposals – 2025 Grant Cycle

The CCHS Network is now accepting applications for its 2025 Research Grant Award, supporting innovative research that advances understanding or treatment of Congenital Central Hypoventilation Syndrome (CCHS). Grants of $50,000 to $100,000 for one year will be awarded to 2–4 selected projects. They are seeking research proposals that highlight the core biology of central and peripheral respiratory mechanisms, emphasize translation of basic science into potential treatments, and focus on real-world healthcare improvements to enhance quality of life for individuals with CCHS.