Learn about The Research Fund
of PHI/IVUN ...


About The Research Fund
Resolution / What research will PHI support?
How will funding decisions be made?
How can contributions be made?

Prior Awards

PHI awarded Louise Rose, RN, MN, PhD, Associate Professor, Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Ontario, Canada, and Mika Nonoyama, RRT, PhD, Assistant Professor at the University of Ontario Institute of Technology a two-year grant award of $50,000 each year.

PHI awarded Antonio Toniolo, MD, FAMH, University of Insurbia, Varese, Italy, a two-year grant award of $50,000 each year.

PHI awarded $25,000 to a research group from Texas Woman's University in Houston, Texas.

PHI awarded $25,000 each to two research groups. One was from the University of Michigan and the other was from Hadassah Medical Center in Jerusalem.

PHI awarded $25,000 to team from University of Insubria, Varese, Italy, led by Antonio Toniolo, MD, PhD, Professor of Medical Microbiology and Virology. The study, Persisting Noninfectious Fragments of Poliovirus in PPS Patients: Virus Detection and Susceptibility to Antiviral Drugs, will complete the sequencing of the genome of persistent fragments of poliovirus strains and compare them to wild-type polioviruses.

PHI Grant Awarded to team at University of Arkansas for Medical Sciences (UAMS) for Pilot Study to Identify PPS Biomarker. The researchers propose to determine whether there is a unique signature, or disease biomarker, in the immune system of individuals with post-polio syndrome (PPS) that would enable a more definitive diagnosis of PPS.

The final report, Timing of Noninvasive Ventilation for Patients with Amyotrophic Lateral Sclerosis, was completed October 2006 by the team of researchers from Johns Hopkins University in Baltimore, Maryland, who conducted a retrospective cohort study of patients with ALS to determine survival time with early use of noninvasive ventilation.

The final report, Women with Polio: Menopause, Late Effects, Life Satisfaction and Emotional Distress, was completed May 14, 2004 by the team of researchers from the University of Michigan in Ann Arbor, Michigan, who conducted a nationwide study of the effects of aging on the lives of polio survivors comparing the problems of men and women.

The final report, Ventilator Users' Perspectives on the Important Elements of Health-Related Quality of Life, presents the perceptions of the health-related quality of life of 26 individuals living in the community (Toronto and Edmonton, Canada) with long-term use of home mechanical ventilation due to neuromuscular disability or traumatic injury.

Opportunities to Participate in Research

A Multicenter, Multi-country Study of Immune Globulin Intravenous (Human) Flebogamma® 5% DIF is underway.

Live in the St. Louis area?  Are you experiencing post-polio syndrome symptoms?

If so, you may be interested in this study.

Additional contributions are needed to increase the corpus of The Research Fund so larger grants can be awarded.

"Contributing to the Fund is an excellent way to honor loved ones,"
says Joan Headley, Executive Director of PHI & IVUN.

Support The Research Fund and/or the vital work of IVUN (tax-deductible) on our secure shopping cart, or download a Donation Form (pdf) to print and mail, call 314-534-0475, or use PayPal to director@post-polio.org.

To offer "Gifts-in-Kind" sponsorships, or to ask about the needs of PHI, contact
Joan L. Headley, Executive Director, at 314-534-0475 or director@post-polio.org.

PHI's Federal I.D. No. 34-0961952


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