Past Issues of
Ventilator-Assisted Living©

Listed by Topic

ISSN 1066-534X (formerly IVUN News)
©Copyright through 2014 Post-Polio Health International

Past issues from 2004-2013 (Vol. 18-27) are available for $1.25 per issue. A complete set of all issues from 2004-2013 (Vols. 18-27) is available for $40. Add $10 for international orders. Order a set or individual issues by contacting us at 314-534-0475 or info@ventusers.org.

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Acid maltase deficiency

__ Pompe Disease Treatment (Vol. 22, No. 2)

__ Luke's Progress (Vol. 17, No. 1)

__ Living with Acid Maltase Deficiency (Vol. 10, No. 2)

__ Living with Pompe Disease (Vol. 10, No. 2)

Adaptive Equipment

__ Simple Solutions (Vol. 27, No. 4)

__ Crafting in Cardboard (Vol. 22, No. 4)

Adolescence

__ Surpassing the Teenage Trach Years (Vol. 22, No. 3)

__ Needed: Independent Living for Ashly (Vol. 22, No. 1)

__ Life as a Teenager ... with a Ventilator (Vol. 19, No. 1)

__ Adolescence: Transitioning from Pediatric to Adult Care (Vol. 17, No. 2)

__ Supreme Court Rules in Favor of Teen Ventilator User (Vol. 13, No. 1) (not online)

__ Home Ventilation in Children & Adolescents (Vol. 4, No. 1) (not online)

__ Home Care for Ventilator-Assisted Children and Adolescents:
A 15-year personal perspective (Vol. 4, No. 1) (not online)

Advocacy

__ New Rules for Pay of Home Health Care Workers (Vol. 27, No. 5)

__ "My Goal Now Is to Live ..." (Vol. 27, No. 4)

__ Carrie Lucas Fights for the Rights of Disabled Parents (Vol. 25, No. 5)

__ Help Eliminate Competitive Bidding (Vol. 23, No. 4)

__ Renting your vent? What would you do if you suddenly owned it? (Vol. 21, No. 3)

__ IVUN's New Medical Advisory Committee Shares Its Views (Vol. 20, No. 2)

Aging

__ Take Charge, Not Chances: In Practice (Vol. 22, No. 1)

__ Take Charge, Not Chances: A Portfolio for Users of Home Mechanical Ventilation, Their Caregivers and Health Professionals (Vol. 21, No. 4)

__ Transition: From Middle Age to Elderly (Vol. 18, No. 1)

__ Aging and Respiratory Function (Vol. 18, No. 1)

__ Ventilator Users, Assisted Living, and Nursing Homes (Vol. 16, No. 1)

__ Aging with a Ventilator: Independence or Security (Vol. 15, No. 4)

Airway clearance

__ Airway Clearance and Lung Volume Recruitment for Individuals with Neuromuscular Disease (Vol. 25, No. 4)

__ Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise (Vol. 16, No. 1)

Amyotrophic lateral sclerosis (ALS)

__ From Around the Network (Vol. 23, No. 4)

__ From Around the Network (Vol. 22, No. 4)

__ The Research Fund/Final Report: Timing of Noninvasive Ventilation for Patients with Amyotrophic Lateral Sclerosis (Vol. 20, No. 4)

__ Living with ALS (Vol. 20, No. 2)

__ ALS Potpourri (Vol. 19, No. 1)

__ PHI Grant Awarded to Johns Hopkins Team to Study Early Use of Noninvasive Ventilation (Vol. 18, No. 4)

__ Quality of Life: Profiles of Living with ALS (Vol. 18, No. 2)

__ My Experience with Noninvasive Ventilation (Vol. 16, No. 4)

__ ALS Pulmonary Protocol (Vol. 14, No. 3)

__ A Happy Anniversary (Vol. 12, No. 4)

__ ALS Update/Jim Ballard (Vol. 12, No. 4)

__ Choosing Life, Even on a Ventilator (Vol. 10, No. 2)

__ Mobility and ALS (Vol. 7, No. 1) (not online)

__ Breathing Failure in ALS and Handling Emergencies (Vol. 4, No. 2) (not online)

__ Thoughts on ALS and Ventilators (Vol. 3, No.1) (not online)

Anesthesia (see Surgery)
Armbrecht, Susan

__ Ave atque Vale! Remembering Susan Armbrecht, 1939-2009 (Vol. 23, No. 3)

Ask the Experts

__ Pulse oximitry (Vol. 26, No. 5)

__ Mouthpiece ventilation setup (Vol. 26, No. 4)

__ Ventilator settings (Vol. 26, No. 2)

__ Respiratory infections (Vol. 25, No. 6)

__ Spinal cord injury (Vol. 25, No. 5)

__ Chronic respiratory failure diagnosis (Vol. 25, No. 4)

__ Cuffed vs. uncuffed trach tubes (Vol. 25, No. 3)

__ Attendant care (Vol. 25, No. 2)

__ Sleep studies (Vol. 25, No. 1)

__ Bilevel vs volume ventilators (Vol. 24, No. 6)

__ Post-polio syndrome (Vol. 24, No. 5)

__ Weaning (Vol. 24, No. 4)

__ Getting a different ventilator: DME reimbursement (Vol. 24, No. 2)

__ Bilevel or volume-cycled ventilation (Vol. 24, No. 1)

__ Medication for bacterial infections (Vol. 23, No. 4)

Assisted living/Nursing homes

__ Assisted Living for Ventilator Users (Vol. 17, No. 4)

__ Ventilator Users, Assisted Living, and Nursing Homes (Vol. 16, No. 1) (not online)

__ Home or Institution? (Vol. 17, No. 1) (not online)

__ Assisted Living for Ventilator Users (Vol. 13, No. 4) (not online)

Attendant care

__ Program to Coordinate Helper Teams for HMV Users in East Denmark (Vol. 25, No. 6)

__ Ask the Experts (Vol. 25, No. 2)

__ From Around the Network (Vol. 22, No. 3)

__ Truly Personal Attendant Care (Vol. 22, No. 1)

__ Request for Increased Funding for Veterans Using Home Ventilators (Vol. 20, No. 3)

__ Maximizing Your Support and Independence through Attendant Care (Vol. 20, No. 2)

__ Emergency Respite Care (Vol. 20, No. 1)

Australia

__ Victorian Respiratory Support Service (Vol. 25, No. 4)

__ Australian Paediatric Ventilator Program (Vol. 14, No. 3) (not online)

__ Long-Term Mechanical Ventilation in Australia (Vol. 3, No. 3) (not online)

Bacterial infections

__ Ask the Experts (Vol. 23, No. 4)

__ Dealing with Bacterial Infections (Vol. 22, No. 2)

Beckett, Katie

__ Mary Katherine "Katie" Beckett, 1978-2012 (Vol. 26, No. 3)

Bi-level pressure support systems

__ Ask the Experts: Bilevel or volume-cycled ventilation (Vol. 24, No. 6)

__ Ask the Experts: Bilevel or volume-cycled ventilation (Vol. 24, No. 1)

__ Bilevel or volume-cycled ventilation? (Vol. 22, No. 4)

__ From Around the Network (Vol. 22, No. 1)

__ Bilevel Ventilation (Vol. 21, No. 2)

__ Update: Medicare Reimbursement Changes Affect Vent Users (Vol. 21, No. 1)

__ Happily Using Bilevel Pressure Ventilation (Vol. 17, No. 2) (not online)

__ Getting Used to Noninvasive Bilevel Pressure Ventilation (Vol. 17, No. 2)

__ My Experience with Noninvasive Ventilation (Vol. 16, No. 4)

__ Managing Noninvasive Ventilation: A Portuguese Experience (Vol. 16, No. 4)

__ Congestive Heart Failure, OSA, and BiPAP (Vol. 16, No. 2)

__ Conversions: Pressure-Limited to Volume Ventilator (Vol. 12, No. 3) (not online)

__ Which Ventilator to Use? (Vol. 12, No. 2)

__ Ventilators and Bi-Level Pressure Devices (Vol. 12, No. 2)

__ Adapting to Masks and BiPAP® (Vol. 11, No. 2)

Biphasic cuirass ventilation

__ Biphasic Cuirass Ventilator and the United Hayek RTX Ventilator (Vol. 27, No. 6)

__ The Road to the RTX (Vol. 27, No. 4)

__ Kaine Rodriguez (Vol. 24, No. 5)

Bird, Forrest

__ Forrest Bird Honored (Vol. 22, No. 4)

Body brace

__ Body Brace (Vol. 16, No. 4)

BPD (see Bronchopulmonary dysplasia)
Braun, Norma

__ Norma Braun Congratulations (Vol. 26, No. 5)

Brazil

__ The Fight for Home Care Ventilation in Brazil (Vol. 22, No. 2)

__ Home Mechanical Ventilation in Brazil Revisited (Vol. 18, No. 2)

__ Home Mechanical Ventilation: A Brazilian Experience (Vol. 15, No. 4) (not online)

Breathing (see Hypoventilation)
Bronchopulmonary dysplasia (BPD)

__ Ventilator-Assisted Infants with Bronchopulmonary Dysplasia (Vol. 8, No. 1) (not online)

Camping/Camps

__ Young Vent User Is a Happy Camper (Vol. 26, No. 1)

__ VACC Camp is Paradise for Kids with Ventilators (Vol. 25, No. 1)

__ Our Camp Inspiration at Double H Ranch Experience (Vol. 24, No. 1)

__ Pennsylvania Vent Camp at Camp Victory (Vol. 20, No. 4)

__ A Treehouse for Everyone (Vol. 19, No. 1)

__ Vent Kids of Alabama Support Group (Vol. 18, No. 3)

__ Fresh Air Camp (Vol. 15, No. 4) (not online)

__ Camping with a Ventilator (Vol. 15, No. 2) (not online)

Canada

__ Improving Long-term Respiratory Care in Ontario, Canada (Vol. 23, No. 3)

__ My Experience with Setting Up Day-time Ventilation (Vol. 23, No. 3)

__ Hospital Experiences and Observations (Vol. 23, No. 1)

__ Pearson's Respiratory Outreach Program Moves into Community (Vol. 15, No. 4) (not online)

__ Ontario's Ventilator Equipment Pool (Vol. 14, No. 2) (not online)

Carbon dioxide retention

__ Demystifying End Tidal CO2 (Vol. 27, No. 3)

Caregivers

__ Request for Increased Funding for Veterans Using Home Ventilators (Vol. 20, No. 3)

__ Maximizing Your Support and Independence through Attendant Care (Vol. 20, No. 2)

__ Emergency Respite Care (Vol. 20, No. 1)

__ Development of RespiteMatch.com (Vol. 19, No. 1)

__ Demands of Caregiving for Home-Based Ventilator-Assisted Individuals:
A Preliminary Report (Vol. 8, No. 2) (not online)

__ Quality of Life Perceptions of Ventilator-Assisted Individuals (Vol. 4, No. 1)

Central Congenital Hypoventilation Syndrome (CCHS)

__ From Around the Network (Vol. 22, No. 4)

__ CCHS: Are Nasal Masks Affecting Facial and Bite Alignment? (Vol. 13, No. 4) (not online)

__ CCHS Update: Matt Stone (Vol. 11, No. 2) (not online)

__ CCHS Registry (Vol. 11, No. 2) (not online)

__ CCHS Data (Vol. 10, No. 2) (not online)

__ Congenital Central Hypoventilation Syndrome (Vol. 8, No. 2) (not online)

__ Changing Equipment as Diagnoses Change (Vol. 8, No. 2) (not online)

__ CCHS Conference (Vol. 8, No. 1) (not online)

__ CCHS Networking: How It Began (Vol. 7, No. 2) (not online)

__ Congenital Central Hypoventilation Syndrome: A Family Profile (Vol. 6, No. 2) (not online)

Charcot-Marie-Tooth

__ Charcot-Marie-Tooth: A "Breath Taking" Reality (Vol. 16, No. 3) (not online)

Children

__ National Program in Chile Improves Quality of Life for Vent-Assisted Children (Vol. 26, No. 5)

__ From Around the Network (Vol. 26, No. 4)

__ Young Vent User Is a Happy Camper (Vol. 26, No. 1)

__ 2012 Camps for Ventilator-Assisted Kids (Vol. 26, No. 1)

__ 2011 Camps for Ventilator-Assisted Kids (Vol. 25, No. 1)

__ VACC Camp is Paradise for Kids with Ventilators (Vol. 25, No. 1)

__ Kaine Rodriguez (Vol. 24, No. 5)

__ A Different Kind of Booster (Vol. 23, No. 1)

__ 2009 Camps for Ventilator-Assisted Kids (Vol. 23, No. 1)

__ Crafting in Cardboard (Vol. 22, No. 4)

__ From Around the Network (Vol. 22, No. 4)

__ From Around the Network (Vol. 22, No. 3)

__ 2008 Camps for Ventilator-Assisted Kids (Vol. 22, No. 1)

__ 2007 Camps for Ventilator-Assisted Children (Vol. 21, No. 1)

__ Pennsylvania Vent Camp at Camp Victory (Vol. 20, No. 4)

__ Swedish Respiratory Unit for Ventilator-Assisted Children (Vol. 19, No. 3)

__ The Experiences of Families with Ventilator-Assisted Children at Home (Vol. 19, No. 2)

__ A Treehouse for Everyone (Vol. 19, No. 1)

__ Home Care for Children in Holland (Vol. 18, No. 4)

__ Vent Kids of Alabama Support Group (Vol. 18, No. 3)

__ Home Mechanical Ventilation in Brazil Revisited (Vol. 18, No. 2)

__ Passy-Muir Speaking Valve: Improving Voice in Children and So Much More (Vol. 18, No. 1)

__ Arizona Respiratory Center Receives Grant (Vol. 18, No. 1)

__ Traveling with Technology-Assisted Children (Vol. 17, No. 3)

__ Adolescence: Transitioning from Pediatric to Adult Care (Vol. 17, No. 2)

__ Long-Term Ventilation: The Jerusalem Experience (Vol. 16, No. 2)

__ Living with SMA in Hong Kong (Vol. 16, No. 1) (not online)

__ Fresh Air Camp (Vol. 15, No. 4) (not online)

__ German Pediatric Masks (Vol. 15, No. 3)

__ Pediatric Noninvasive Ventilation (Vol. 15, No. 3)

__ The Polish National Center for Home Mechanical Ventilation in Children (Vol. 15, No. 3)

__ Assistance Dogs for Children with CCHS (Vol. 15, No. 1) (not online)

__ Improving Quality of Life (Vol. 14, No. 4)

__ Australian Paediatric Ventilator Program (Vol. 14, No. 3) (not online)

__ IDEA: Individuals with Disabilities Education Act (Vol. 14, No. 2) (not online)

__ Home Care and Mechanical Ventilation for Children in Thailand (Vol. 14, No. 1)

__ Paediatric Home Ventilation in the United Kingdom (Vol. 13, No. 4) (not online)

__ A Family Home, Not a Nursing Home (Vol. 13, No. 2)

__ The Baku Baku Club: Education and Ventilator-Assisted Children in Japan; Saki's Story (Vol. 12, No. 4) (not online)

__ An Israeli Experience (Vol. 12, No. 4)

__ Longterm Ventilation for Children in the United Kingdom (Vol. 12, No. 3) (not online)

__ From the Desk of David-Ecker-Russ (Vol. 12, No. 1) (not online)

__ Passy-Muir Valve Helps Wean from Tracheostomy (Vol. 10, No. 1) (not online)

__ Children and Teens as Ventilator Users (Vol. 9, No. 1) (not online)

__ Living at Home: Overcoming Obstacles – Pediatric Issues (Vol. 8, No. 2) (not online)

__ Changing Equipment as Diagnoses Change – Congenital Central Hypoventilation Syndrome, Muscular Dystrophy, Spinal Cord Injury, Diaphragm Pacing (Vol. 8, No. 2) (one is online)

__ Traveling with a Child with a Trach (Vol. 8, No. 1) (not online)

__ Ventilator-Assisted Infants with Bronchopulmonary Dysplasia (Vol. 8, No. 1) (not online)

__ CCHS Conference (Vol. 8, No. 1) (not online)

__ Issues and Challenges of a Technology-Dependent Child (Vol. 7, No. 2) (not online)

__ CCHS Networking: How It Began (Vol. 7, No. 2) (not online)

__ Home Ventilation in Children & Adolescents (Vol. 4, No. 1) (not online)

__ Home Care for Ventilator-Assisted Children and Adolescents:
A 15-year personal perspective (Vol. 4, No. 1) (not online)

__ Erin's Story: Yes, You Can Outgrow the Need for a Ventilator! (Vol. 3, No. 1) (not online)

__ Catch-22 for Home Care for Ventilator Assisted Children (Vol. 1, No. 2) (not online)

 

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