Past Issues of
Ventilator-Assisted Living©
(listed by topic)
ISSN 1066-534X (formerly IVUN News)
Past issues from 2000-2009 (Vol. 14-23) are available for $1.25 per issue. Contact us at 314-534-0475 or info@ventusers.org for more information on ordering individual issues.
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Acid maltase deficiency
__ Pompe Disease Treatment (Vol. 22, No. 2)
__ Luke's Progress (Vol. 17, No. 1)
__ Living with Acid Maltase Deficiency (Vol. 10, No. 2)
__ Living with Pompe Disease (Vol. 10, No. 2)
Adaptive Equipment
__ Crafting in Cardboard (Vol. 22, No. 4)
Adolescence
__ Surpassing the Teenage Trach Years (Vol. 22, No. 3)
__ Needed: Independent Living for Ashly (Vol. 22, No. 1)
__ Life as a Teenager ... with a Ventilator (Vol. 19, No. 1)
__ Adolescence: Transitioning from Pediatric to Adult Care (Vol. 17, No. 2)
__ Supreme Court Rules in Favor of Teen Ventilator User (Vol. 13, No. 1) (not online)
__ Home Ventilation in Children & Adolescents (Vol. 4, No. 1) (not online)
__ Home Care for Ventilator-Assisted Children and Adolescents:
A 15-year personal perspective (Vol. 4, No. 1) (not online)
Advocacy
__ Help Eliminate Competitive Bidding (Vol. 23, No. 4)
__ Renting your vent? What would you do if you suddenly owned it? (Vol. 21, No. 3)
__ IVUN's New Medical Advisory Committee Shares Its Views (Vol. 20, No. 2)
Aging
__ Take Charge, Not Chances: In Practice (Vol. 22, No. 1)
__ Take Charge, Not Chances: A Portfolio for Users of Home Mechanical Ventilation, Their Caregivers and Health Professionals (Vol. 21, No. 4)
__ Transition: From Middle Age to Elderly (Vol. 18, No. 1)
__ Aging and Respiratory Function (Vol. 18, No. 1)
__ Ventilator Users, Assisted Living, and Nursing Homes (Vol. 16, No. 1)
__ Aging with a Ventilator: Independence or Security (Vol. 15, No. 4)
Airway clearance
__ Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise (Vol. 16, No. 1)
Amyotrophic lateral sclerosis (ALS)
__ From Around the Network (Vol. 23, No. 4)
__ From Around the Network (Vol. 22, No. 4)
__ The Research Fund/Final Report: Timing of Noninvasive Ventilation for Patients with Amyotrophic Lateral Sclerosis (Vol. 20, No. 4)
__ Living with ALS (Vol. 20, No. 2)
__ ALS Potpourri (Vol. 19, No. 1)
__ PHI Grant Awarded to Johns Hopkins Team to Study Early Use of
Noninvasive Ventilation (Vol. 18, No. 4)
Quality of Life: Profiles of Living with ALS (Vol. 18, No. 2)
__ My Experience with Noninvasive Ventilation (Vol. 16, No. 4)
__ ALS Pulmonary Protocol (Vol. 14, No. 3)
__ A Happy Anniversary (Vol. 12, No. 4)
__ ALS Update/Jim Ballard (Vol. 12, No. 4)
__ Choosing Life, Even on a Ventilator (Vol. 10, No. 2)
__ Mobility and ALS (Vol. 7, No. 1) (not online)
__ Breathing Failure in ALS and Handling Emergencies (Vol. 4, No. 2) (not online)
__ Thoughts on ALS and Ventilators (Vol. 3, No.1) (not online)
Anesthesia (see Surgery)
Armbrecht, Susan
__ Ave atque Vale! Remembering Susan Armbrecht, 1939-2009 (Vol. 23, No. 3)
Assisted living/Nursing homes
__ Assisted Living for Ventilator Users (Vol. 17, No. 4)
__ Ventilator Users, Assisted Living, and Nursing Homes (Vol. 16, No. 1) (not online)
__ Home or Institution? (Vol. 17, No. 1) (not online)
__ Assisted Living for Ventilator Users (Vol. 13, No. 4) (not online)
Attendant care
__ From Around the Network (Vol. 22, No. 3)
__ Truly Personal Attendant Care (Vol. 22, No. 1)
__ Request for Increased Funding for Veterans Using Home Ventilators (Vol. 20, No. 3)
__ Maximizing Your Support and Independence through Attendant Care (Vol. 20, No. 2)
__ Emergency Respite Care (Vol. 20, No. 1)
Australia
__ Australian Paediatric Ventilator Program (Vol. 14, No. 3) (not online)
__ Long-Term Mechanical Ventilation in Australia (Vol. 3, No. 3) (not online)
Bacterial infections
__ Ask the Experts (Vol. 23, No. 4)
__ Dealing with Bacterial Infections (Vol. 22, No. 2)
Bi-level pressure support systems
__ Bilevel or volume-cycled ventilation? (Vol. 22, No. 4) (not online)
__ From Around the Network (Vol. 22, No. 1)
__ Bilevel Ventilation (Vol. 21, No. 2)
__ Update: Medicare Reimbursement Changes Affect Vent Users (Vol. 21, No. 1)
__ Happily Using Bilevel Pressure Ventilation (Vol. 17, No. 2) (not online)
__ Getting Used to Noninvasive Bilevel Pressure Ventilation (Vol. 17, No. 2)
__ My Experience with Noninvasive Ventilation (Vol. 16, No. 4)
__ Managing Noninvasive Ventilation: A Portuguese Experience (Vol. 16, No. 4)
__ Congestive Heart Failure, OSA, and BiPAP (Vol. 16, No. 2)
__ Conversions: Pressure-Limited to Volume Ventilator (Vol. 12, No. 3) (not online)
__ Which Ventilator to Use? (Vol. 12, No. 2)
__ Ventilators and Bi-Level Pressure Devices (Vol. 12, No. 2)
__ Adapting to Masks and BiPAP® (Vol. 11, No. 2)
Bird, Forrest
__ Forrest Bird Honored (Vol. 22, No. 4)
Body brace
__ Body Brace (Vol. 16, No. 4)
BPD (see Bronchopulmonary dysplasia)
Brazil
__ The Fight for Home Care Ventilation in Brazil (Vol. 22, No. 2)
__ Home Mechanical Ventilation in Brazil Revisited (Vol. 18, No. 2)
__ Home Mechanical Ventilation: A Brazilian Experience (Vol. 15, No. 4) (not online)
Breathing (see Hypoventilation)
Bronchopulmonary dysplasia (BPD)
__ Ventilator-Assisted Infants with Bronchopulmonary Dysplasia (Vol. 8, No. 1) (not online)
Camping/Camps
__ 2009 Camps for Ventilator-Assisted Kids (Vol. 23, No. 1)
__ 2008 Camps for Ventilator-Assisted Kids (Vol. 22, No. 1)
__ Pennsylvania Vent Camp at Camp Victory (Vol. 20, No. 4)
__ A Treehouse for Everyone (Vol. 19, No. 1)
__ Vent Kids of Alabama Support Group (Vol. 18, No. 3)
__ Fresh Air Camp (Vol. 15, No. 4) (not online)
__ Camping with a Ventilator (Vol. 15, No. 2) (not online)
Canada
__ Improving Long-term Respiratory Care in Ontario, Canada (Vol. 23, No. 3)
__ My Experience with Setting Up Day-time Ventilation (Vol. 23, No. 3)
__ Hospital Experiences and Observations (Vol. 23, No. 1)
__ Pearson's Respiratory Outreach Program Moves into Community (Vol. 15, No. 4) (not online)
__ Ontario's Ventilator Equipment Pool (Vol. 14, No. 2) (not online)
Caregivers
__ Request for Increased Funding for Veterans Using Home Ventilators (Vol. 20, No. 3)
__ Maximizing Your Support and Independence through Attendant Care (Vol. 20, No. 2)
__ Emergency Respite Care (Vol. 20, No. 1)
__ Development of RespiteMatch.com (Vol. 19, No. 1)
__ Demands of Caregiving for Home-Based Ventilator-Assisted Individuals:
A Preliminary Report (Vol. 8, No. 2) (not online)
__ Quality of Life Perceptions of Ventilator-Assisted Individuals (Vol. 4, No. 1)
Central Congenital Hypoventilation Syndrome (CCHS)
__ From Around the Network (Vol. 22, No. 4)
__ CCHS: Are Nasal Masks Affecting Facial and Bite Alignment? (Vol. 13, No. 4) (not online)
__ CCHS Update: Matt Stone (Vol. 11, No. 2) (not online)
__ CCHS Registry (Vol. 11, No. 2) (not online)
__ CCHS Data (Vol. 10, No. 2) (not online)
__ Congenital Central Hypoventilation Syndrome (Vol. 8, No. 2) (not online)
__ Changing Equipment as Diagnoses Change (Vol. 8, No. 2) (not online)
__ CCHS Conference (Vol. 8, No. 1) (not online)
__ CCHS Networking: How It Began (Vol. 7, No. 2) (not online)
__ Congenital Central Hypoventilation Syndrome: A Family Profile (Vol. 6, No. 2) (not online)
Charcot-Marie-Tooth
__ Charcot-Marie-Tooth: A "Breath Taking" Reality (Vol. 16, No. 3) (not online)
Children
__ A Different Kind of Booster (Vol. 23, No. 1)
__ 2009 Camps for Ventilator-Assisted Kids (Vol. 23, No. 1)
__ Crafting in Cardboard (Vol. 22, No. 4)
__ From Around the Network (Vol. 22, No. 4)
__ From Around the Network (Vol. 22, No. 3)
__ 2008 Camps for Ventilator-Assisted Kids (Vol. 22, No. 1)
__ 2007 Camps for Ventilator-Assisted Children (Vol. 21, No. 1)
__ Pennsylvania Vent Camp at Camp Victory (Vol. 20, No. 4)
__ Swedish Respiratory Unit for Ventilator-Assisted Children (Vol. 19, No. 3)
__ The Experiences of Families with Ventilator-Assisted Children at Home (Vol. 19, No. 2)
__ A Treehouse for Everyone (Vol. 19, No. 1)
__ Home Care for Children in Holland (Vol. 18, No. 4)
__ Vent Kids of Alabama Support Group (Vol. 18, No. 3)
__ Home Mechanical Ventilation in Brazil Revisited (Vol. 18, No. 2)
__ Passy-Muir Speaking Valve: Improving Voice in Children and So Much More (Vol. 18, No. 1)
__ Arizona Respiratory Center Receives Grant (Vol. 18, No. 1)
__ Traveling with Technology-Assisted Children (Vol. 17, No. 3)
__ Adolescence: Transitioning from Pediatric to Adult Care (Vol. 17, No. 2)
__ Long-Term Ventilation: The Jerusalem Experience (Vol. 16, No. 2)
__ Living with SMA in Hong Kong (Vol. 16, No. 1) (not online)
__ Fresh Air Camp (Vol. 15, No. 4) (not online)
__ German Pediatric Masks (Vol. 15, No. 3)
__ Pediatric Noninvasive Ventilation (Vol. 15, No. 3)
__ The Polish National Center for Home Mechanical Ventilation in Children (Vol. 15, No. 3)
__ Assistance Dogs for Children with CCHS (Vol. 15, No. 1) (not online)
__ Improving Quality of Life (Vol. 14, No. 4)
__ Australian Paediatric Ventilator Program (Vol. 14, No. 3) (not online)
__ IDEA: Individuals with Disabilities Education Act (Vol. 14, No. 2) (not online)
__ Home Care and Mechanical Ventilation for Children in Thailand (Vol. 14, No. 1)
__ Paediatric Home Ventilation in the United Kingdom (Vol. 13, No. 4) (not online)
__ A Family Home, Not a Nursing Home (Vol. 13, No. 2)
__ The Baku Baku Club: Education and Ventilator-Assisted Children in Japan; Saki's Story (Vol. 12, No. 4) (not online)
__ An Israeli Experience (Vol. 12, No. 4)
__ Longterm Ventilation for Children in the United Kingdom (Vol. 12, No. 3) (not online)
__ From the Desk of David-Ecker-Russ (Vol. 12, No. 1) (not online)
__ Passy-Muir Valve Helps Wean from Tracheostomy (Vol. 10, No. 1) (not online)
__ Children and Teens as Ventilator Users (Vol. 9, No. 1) (not online)
__ Living at Home: Overcoming Obstacles – Pediatric Issues (Vol. 8, No. 2) (not online)
__ Changing Equipment as Diagnoses Change – Congenital Central Hypoventilation Syndrome, Muscular Dystrophy, Spinal Cord Injury, Diaphragm Pacing (Vol. 8, No. 2) (one is online)
__ Traveling with a Child with a Trach (Vol. 8, No. 1) (not online)
__ Ventilator-Assisted Infants with Bronchopulmonary Dysplasia (Vol. 8, No. 1) (not online)
__ CCHS Conference (Vol. 8, No. 1) (not online)
__ Issues and Challenges of a Technology-Dependent Child (Vol. 7, No. 2) (not online)
__ CCHS Networking: How It Began (Vol. 7, No. 2) (not online)
__ Home Ventilation in Children & Adolescents (Vol. 4, No. 1) (not online)
__ Home Care for Ventilator-Assisted Children and Adolescents:
A 15-year personal perspective (Vol. 4, No. 1) (not online)
__ Erin's Story: Yes, You Can Outgrow the Need for a Ventilator! (Vol. 3, No. 1) (not online)
__ Catch-22 for Home Care for Ventilator Assisted Children (Vol. 1, No. 2) (not online)
Chronic obstructive pulmonary disease (COPD)
__ Noninvasive Positive Pressure Ventilation (NPPV) for People with COPD: A New Group of Ventilator Users? (Vol. 13, No. 2)
Communication
__ Letter to the Editor (Vol. 18, No. 2)
__ Passy-Muir Speaking Valve: Improving Voice in Children and So Much More (Vol. 18, No. 1)
How the Passy-Muir Valve Works
__ Let's Hear It for Free Speech! (Vol. 13, No. 1)
__ Speak to Me ... Better (Vol. 12, No. 4) (not online)
__ Tracheal Toilet and Speech (Vol. 10, No. 1) (not online)
__ The Tracheotomized Patient: Tracheal Toilet and Speech (Vol. 9, No. 2) (not online)
__ Communication for the Ventilator User with a Tracheostomy (Vol. 7, No. 1)
COPD (see Chronic obstructive pulmonary disease)
__ Noninvasive Positive Pressure Ventilation (NPPV) for People with COPD: A New Group of Ventilator Users? (Vol. 13, No. 2)
Cough
__ Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise (Vol. 16, No. 1)
__ Post-Polio, Swallowing, and Cough (Vol. 15, No. 3) (not online)
__ Assisted Cough: Benefits and Techniques (Vol. 12, No. 1)
__ Monitoring Respiratory Function (Vol. 11, No. 2) (not online)
__ Suggestions for Avoiding Respiratory Complications (Vol. 9, No. 2)
__ Improving Cough and Decreasing Infection (Vol. 8, No. 2) (not online)
__ The Cof-flator Revisited (Vol. 7, No. 1)
Denmark
__ Forum on Home Mechanical Ventilation: The Danish Experience (Vol. 11, No. 2) (not online)
__ Danish Observations about American Ventilator Users (Vol. 10, No. 1) (not online)
__ New Danish Custom Nasal Mask (Vol. 10, No. 1) (not online)
__ Respirator Use in Denmark (Vol. 6, No. 2) (not online)
Dental work
__ CCHS: Are Nasal Masks Affecting Facial and Bite Alignment? (Vol. 13, No. 4) (not online)
__ Dentist Visits (Vol. 6, No. 2)
Diaphragmatic pacing
__ From Around the Network (Vol. 22, No. 3)
__ Letter to the Editor: DPS System Article Clarified (Vol. 20, No. 4)
__ The Latest Facts about the Diaphragm Pacing Stimulation (DPS) System (Vol. 20, No. 3)
__ Phrenic Nerve Pacing (Vol. 17, No. 1)
__ New Diaphragm Pacing System (Vol. 15, No. 2)
__ Phrenic Nerve Pacing (Vol. 13, No. 1)
__ Changing Equipment as Diagnoses Change – Congenital Central Hypoventilation Syndrome,
Muscular Dystrophy, Spinal Cord Injury, Diaphragm Pacing (Vol. 8, No. 2)
Dogs, assistance
__ Ninth International Noninvasive Ventilation Conference:
"From the ICU to Home," October 2003, Orlando, Florida (Vol. 17, No. 4) (not online)
__ Assistance Dogs for Children with CCHS (Vol. 15, No. 1) (not online)
Education
__ Living on Your Own in College and Beyond (Vol. 19, No. 2)
__ IDEA: Individuals with Disabilities Education Act (Vol. 14, No. 2)
__ Schools and Programs for Pediatric Ventilator Users (Vol. 10, No. 2) (not online)
England
__ Paediatric Home Ventilation in the United Kingdom (Vol. 13, No. 4) (not online)
__ Long-term Ventilation for Children in the United Kingdom (Vol. 12, No. 3) (not online)
__ On Holiday at Netley Waterside House (Vol. 10, No. 1)
Equipment and Ventilatory Equipment
__ Frequently Asked Questions (Vol. 22, No. 3)
__ Renting your vent? What would you do if you suddenly owned it? (Vol. 21, No. 3)
__ IVUN Equipment Exchange: PLV-100s Donated (Vol. 19, No. 1)
__ IVUN Ventilatory Equipment Exchange (Vol. 18, No. 1)
Fiberoptic intubation
__ What Is Fiberoptic Intubation? (Vol. 14, No. 4)
Finland
__ Home Mechanical Ventilation in Finland (Vol. 23, No. 4)
__ Home Mechanical Ventilation in Finland (Vol. 14, No. 4) (not online)
__ Finland: Ventilator Use (Vol. 9, No. 1) (not online)
France
__ Ventilator Conference in Lyon (Vol. 19, No. 2)
__ Living at Home: Overcoming Obstacles – Pediatric Issues, France and Long-term Ventilation (Vol. 8, No. 2) (not online)
Frog breathing
__ From Around the Network (Vol. 23, No. 4)
__ Frog breathing (Vol. 13, No. 2) (not online)
__ Potpourri: Frog Breathing with Gary McPherson video (Vol. 11, No. 2) (not online)
__ Frog Breathing: Still Useful, Still Lifesaving (Vol. 10, No. 1)
__ GPB for High Level Quads (Vol. 1, No. 2) (not online)
Heart problems
__ Congestive Heart Failure, OSA, and BiPAP (Vol. 16, No. 2)
Home care programs
__ Home Mechanical Ventilation in Finland (Vol. 23, No. 4)
__ Improving Long-term Respiratory Care in Ontario, Canada (Vol. 23, No. 3)
__ The Fight for Home Care Ventilation in Brazil (Vol. 22, No. 2)
__ New York's Consumer-Directed Home Care Program: Chapter 2 (Vol. 10, No. 1) (not online)
__ Consumer-Directed Home Care Program Saved from New York Budget Ax and Expanded (Vol. 9, No. 2) (not online)
__ Home Mechanical Ventilation: Obstacles to Living at Home (Vol. 8, No. 2) (not online)
Hong Kong
__ Living with SMA in Hong Kong (Vol. 16, No. 1) (not online)
Humidification
__ A Different Kind of Booster (Vol. 23, No. 1)
__ Treating Bronchitis with H2O (Vol. 17, No. 1)
__ Humidification (Vol. 17, No. 1)
Hypoventilation
__ Hypoventilation? Obstructive Sleep Apnea? Different Tests, Different Treatment (Vol. 19, No. 3)
__ A Classic Case of Hypoventilation (Vol. 17, No. 1)
__ What Is Hypoventilation? (Vol. 17, No. 1)
__ Underventilation (Vol. 2, No. 2) (not online)
Iceland
__ Iceland Offers Attendant Care and Home Ventilators (Vol. 21, No. 2)
IDEA
__ IDEA: Individuals with Disabilities Education Act (Vol. 14, No. 2)
India
__ Air Travel to India (Vol. 21, No. 3)
Inspiratory muscle training
__ Update: Inspiratory Muscle Training Study (Vol. 15, No. 2)
__ Respiratory Study with SCI Ventilator Users (Vol. 15, No. 1)
Ireland
__ Noninvasive Ventilation: A History of My Life (Vol. 17, No. 4)
Iron lungs
__ IVUN Ventilatory Equipment Exchange (Vol. 18, No. 1)
__ Respironics Colorado Announces Discontinuation of Service and Repair Support for Certain Ventilation Equipment (Vol. 18, No. 1)
__ Conversion: Iron Lung to Porta-Lung™ (Vol. 12, No. 3)
__ John H. Emerson and the Iron Lung (Vol. 11, No. 1) (not online)
__ Life after Lung (Vol. 2, No. 1) (not online)
__ The Iron Lung: A User's Guide (Vol. 2, No. 1) (not online)
Israel
__ Long-Term Ventilation: The Jerusalem Experience (Vol. 16, No. 2)
__ An Israeli Experience (Vol. 12, No. 4)
Italy
__ Italian Ventilator User Survey (Vol. 15, No. 2)
Japan
__ Japanese Ventilator Users Network's Successful Symposia (Vol. 18, No. 3)
__ Saki's Story (Vol. 12, No. 4)
__ The Baku Baku Club: Education and Ventilator-Assisted Children in Japan (Vol. 12, No. 4)
__ Forum on Home Mechanical Ventilation: The Japanese Experience (Vol. 11, No. 2)
__ Spring Has Come (Vol. 6, No. 1)
__ Ventilator Use in Japan (Vol. 6, No. 1)
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