Past Issues of
Ventilator-Assisted Living^©

(listed by topic)

ISSN 1066-534X (formerly IVUN News)

Past issues from 2000-2009 (Vol. 14-23) are available for $1.25 per issue. Contact us at 314-534-0475 or info@ventusers.org for more information on ordering individual issues.

A complete set of all issues from 2000-2009 (Vols. 14-23) is available for $40. Add $10 for international orders.

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__ Supreme Court Rules in Favor of Teen Ventilator User (Vol. 13, No. 1) (not online)

__ Home Ventilation in Children & Adolescents (Vol. 4, No. 1) (not online)

__ Home Care for Ventilator-Assisted Children and Adolescents:
A 15-year personal perspective (Vol. 4, No. 1) (not online)

Advocacy

__ Help Eliminate Competitive Bidding (Vol. 23, No. 4)

__ Renting your vent? What would you do if you suddenly owned it? (Vol. 21, No. 3)

__ IVUN's New Medical Advisory Committee Shares Its Views (Vol. 20, No. 2)

Aging

__ Take Charge, Not Chances: In Practice (Vol. 22, No. 1)

__ Take Charge, Not Chances: A Portfolio for Users of Home Mechanical Ventilation, Their Caregivers and Health Professionals (Vol. 21, No. 4)

__ Transition: From Middle Age to Elderly (Vol. 18, No. 1)

__ Aging and Respiratory Function (Vol. 18, No. 1)

__ Ventilator Users, Assisted Living, and Nursing Homes (Vol. 16, No. 1)

__ Aging with a Ventilator: Independence or Security (Vol. 15, No. 4)

Airway clearance

__ Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise (Vol. 16, No. 1)

Amyotrophic lateral sclerosis (ALS)

__ From Around the Network (Vol. 23, No. 4)

__ From Around the Network (Vol. 22, No. 4)

__ The Research Fund/Final Report: Timing of Noninvasive Ventilation for Patients with Amyotrophic Lateral Sclerosis (Vol. 20, No. 4)

__ Living with ALS (Vol. 20, No. 2)

__ ALS Potpourri (Vol. 19, No. 1)

__ PHI Grant Awarded to Johns Hopkins Team to Study Early Use of
Noninvasive Ventilation (Vol. 18, No. 4)

Quality of Life: Profiles of Living with ALS (Vol. 18, No. 2)

__ My Experience with Noninvasive Ventilation (Vol. 16, No. 4)

__ ALS Pulmonary Protocol (Vol. 14, No. 3)

__ A Happy Anniversary (Vol. 12, No. 4)

__ ALS Update/Jim Ballard (Vol. 12, No. 4)

__ Choosing Life, Even on a Ventilator (Vol. 10, No. 2)

__ Mobility and ALS (Vol. 7, No. 1) (not online)

__ Breathing Failure in ALS and Handling Emergencies (Vol. 4, No. 2) (not online)

__ Thoughts on ALS and Ventilators (Vol. 3, No.1) (not online)

Anesthesia (see Surgery)

Armbrecht, Susan

__ Ave atque Vale! Remembering Susan Armbrecht, 1939-2009 (Vol. 23, No. 3)

Assisted living/Nursing homes

__ Assisted Living for Ventilator Users (Vol. 17, No. 4)

__ Ventilator Users, Assisted Living, and Nursing Homes (Vol. 16, No. 1) (not online)

__ Home or Institution? (Vol. 17, No. 1) (not online)

__ Assisted Living for Ventilator Users (Vol. 13, No. 4) (not online)

Attendant care

__ From Around the Network (Vol. 22, No. 3)

__ Truly Personal Attendant Care (Vol. 22, No. 1)

__ Request for Increased Funding for Veterans Using Home Ventilators (Vol. 20, No. 3)

__ Maximizing Your Support and Independence through Attendant Care (Vol. 20, No. 2)

__ Emergency Respite Care (Vol. 20, No. 1)

Australia

__ Australian Paediatric Ventilator Program (Vol. 14, No. 3) (not online)

__ Long-Term Mechanical Ventilation in Australia (Vol. 3, No. 3) (not online)

Bacterial infections

__ Ask the Experts (Vol. 23, No. 4)

__ Dealing with Bacterial Infections (Vol. 22, No. 2)

Bi-level pressure support systems

__ Bilevel or volume-cycled ventilation? (Vol. 22, No. 4) (not online)

__ From Around the Network (Vol. 22, No. 1)

__ Bilevel Ventilation (Vol. 21, No. 2)

__ Update: Medicare Reimbursement Changes Affect Vent Users (Vol. 21, No. 1)

__ Happily Using Bilevel Pressure Ventilation (Vol. 17, No. 2) (not online)

__ Getting Used to Noninvasive Bilevel Pressure Ventilation (Vol. 17, No. 2)

__ My Experience with Noninvasive Ventilation (Vol. 16, No. 4)

__ Managing Noninvasive Ventilation: A Portuguese Experience (Vol. 16, No. 4)

__ Congestive Heart Failure, OSA, and BiPAP (Vol. 16, No. 2)

__ Conversions: Pressure-Limited to Volume Ventilator (Vol. 12, No. 3) (not online)

__ Which Ventilator to Use? (Vol. 12, No. 2)

__ Ventilators and Bi-Level Pressure Devices (Vol. 12, No. 2)

__ Adapting to Masks and BiPAP^® (Vol. 11, No. 2)

Bird, Forrest

__ Forrest Bird Honored (Vol. 22, No. 4)

Body brace

__ Body Brace (Vol. 16, No. 4)

BPD (see Bronchopulmonary dysplasia)

Brazil

__ The Fight for Home Care Ventilation in Brazil (Vol. 22, No. 2)

__ Home Mechanical Ventilation in Brazil Revisited (Vol. 18, No. 2)

__ Home Mechanical Ventilation: A Brazilian Experience (Vol. 15, No. 4) (not online)

Breathing (see Hypoventilation)

Bronchopulmonary dysplasia (BPD)

__ Ventilator-Assisted Infants with Bronchopulmonary Dysplasia (Vol. 8, No. 1) (not online)

Camping/Camps

__ 2009 Camps for Ventilator-Assisted Kids (Vol. 23, No. 1)

__ 2008 Camps for Ventilator-Assisted Kids (Vol. 22, No. 1)

__ Pennsylvania Vent Camp at Camp Victory (Vol. 20, No. 4)

__ A Treehouse for Everyone (Vol. 19, No. 1)

__ Vent Kids of Alabama Support Group (Vol. 18, No. 3)

__ Fresh Air Camp (Vol. 15, No. 4) (not online)

__ Camping with a Ventilator (Vol. 15, No. 2) (not online)

Canada

__ Improving Long-term Respiratory Care in Ontario, Canada (Vol. 23, No. 3)

__ My Experience with Setting Up Day-time Ventilation (Vol. 23, No. 3)

__ Hospital Experiences and Observations (Vol. 23, No. 1)

__ Pearson's Respiratory Outreach Program Moves into Community (Vol. 15, No. 4) (not online)

__ Ontario's Ventilator Equipment Pool (Vol. 14, No. 2) (not online)

Caregivers

__ Request for Increased Funding for Veterans Using Home Ventilators (Vol. 20, No. 3)

__ Maximizing Your Support and Independence through Attendant Care (Vol. 20, No. 2)

__ Emergency Respite Care (Vol. 20, No. 1)

__ Development of RespiteMatch.com (Vol. 19, No. 1)

__ Demands of Caregiving for Home-Based Ventilator-Assisted Individuals:
A Preliminary Report (Vol. 8, No. 2) (not online)

__ Quality of Life Perceptions of Ventilator-Assisted Individuals (Vol. 4, No. 1)

Central Congenital Hypoventilation Syndrome (CCHS)

__ From Around the Network (Vol. 22, No. 4)

__ CCHS: Are Nasal Masks Affecting Facial and Bite Alignment? (Vol. 13, No. 4) (not online)

__ CCHS Update: Matt Stone (Vol. 11, No. 2) (not online)

__ CCHS Registry (Vol. 11, No. 2) (not online)

__ CCHS Data (Vol. 10, No. 2) (not online)

__ Congenital Central Hypoventilation Syndrome (Vol. 8, No. 2) (not online)

__ Changing Equipment as Diagnoses Change (Vol. 8, No. 2) (not online)

__ CCHS Conference (Vol. 8, No. 1) (not online)

__ CCHS Networking: How It Began (Vol. 7, No. 2) (not online)

__ Congenital Central Hypoventilation Syndrome: A Family Profile (Vol. 6, No. 2) (not online)

Charcot-Marie-Tooth

__ Charcot-Marie-Tooth: A "Breath Taking" Reality (Vol. 16, No. 3) (not online)

Children

__ A Different Kind of Booster (Vol. 23, No. 1)

__ 2009 Camps for Ventilator-Assisted Kids (Vol. 23, No. 1)

__ Crafting in Cardboard (Vol. 22, No. 4)

__ From Around the Network (Vol. 22, No. 4)

__ From Around the Network (Vol. 22, No. 3)

__ 2008 Camps for Ventilator-Assisted Kids (Vol. 22, No. 1)

__ 2007 Camps for Ventilator-Assisted Children (Vol. 21, No. 1)

__ Pennsylvania Vent Camp at Camp Victory (Vol. 20, No. 4)

__ Swedish Respiratory Unit for Ventilator-Assisted Children (Vol. 19, No. 3)

__ The Experiences of Families with Ventilator-Assisted Children at Home (Vol. 19, No. 2)

__ A Treehouse for Everyone (Vol. 19, No. 1)

__ Home Care for Children in Holland (Vol. 18, No. 4)

__ Vent Kids of Alabama Support Group (Vol. 18, No. 3)

__ Home Mechanical Ventilation in Brazil Revisited (Vol. 18, No. 2)

__ Passy-Muir Speaking Valve: Improving Voice in Children and So Much More (Vol. 18, No. 1)

__ Arizona Respiratory Center Receives Grant (Vol. 18, No. 1)

__ Traveling with Technology-Assisted Children (Vol. 17, No. 3)

__ Adolescence: Transitioning from Pediatric to Adult Care (Vol. 17, No. 2)

__ Long-Term Ventilation: The Jerusalem Experience (Vol. 16, No. 2)

__ Living with SMA in Hong Kong (Vol. 16, No. 1) (not online)

__ Fresh Air Camp (Vol. 15, No. 4) (not online)

__ German Pediatric Masks (Vol. 15, No. 3)

__ Pediatric Noninvasive Ventilation (Vol. 15, No. 3)

__ The Polish National Center for Home Mechanical Ventilation in Children (Vol. 15, No. 3)

__ Assistance Dogs for Children with CCHS (Vol. 15, No. 1) (not online)

__ Improving Quality of Life (Vol. 14, No. 4)

__ Australian Paediatric Ventilator Program (Vol. 14, No. 3) (not online)

__ IDEA: Individuals with Disabilities Education Act (Vol. 14, No. 2) (not online)

__ Home Care and Mechanical Ventilation for Children in Thailand (Vol. 14, No. 1)

__ Paediatric Home Ventilation in the United Kingdom (Vol. 13, No. 4) (not online)

__ A Family Home, Not a Nursing Home (Vol. 13, No. 2)

__ The Baku Baku Club: Education and Ventilator-Assisted Children in Japan; Saki's Story (Vol. 12, No. 4) (not online)

__ An Israeli Experience (Vol. 12, No. 4)

__ Longterm Ventilation for Children in the United Kingdom (Vol. 12, No. 3) (not online)

__ From the Desk of David-Ecker-Russ (Vol. 12, No. 1) (not online)

__ Passy-Muir Valve Helps Wean from Tracheostomy (Vol. 10, No. 1) (not online)

__ Children and Teens as Ventilator Users (Vol. 9, No. 1) (not online)

__ Living at Home: Overcoming Obstacles – Pediatric Issues (Vol. 8, No. 2) (not online)

__ Changing Equipment as Diagnoses Change – Congenital Central Hypoventilation Syndrome, Muscular Dystrophy, Spinal Cord Injury, Diaphragm Pacing (Vol. 8, No. 2) (one is online)

__ Traveling with a Child with a Trach (Vol. 8, No. 1) (not online)

__ Ventilator-Assisted Infants with Bronchopulmonary Dysplasia (Vol. 8, No. 1) (not online)

__ CCHS Conference (Vol. 8, No. 1) (not online)

__ Issues and Challenges of a Technology-Dependent Child (Vol. 7, No. 2) (not online)

__ CCHS Networking: How It Began (Vol. 7, No. 2) (not online)

__ Home Ventilation in Children & Adolescents (Vol. 4, No. 1) (not online)

__ Home Care for Ventilator-Assisted Children and Adolescents:
A 15-year personal perspective (Vol. 4, No. 1) (not online)

__ Erin's Story: Yes, You Can Outgrow the Need for a Ventilator! (Vol. 3, No. 1) (not online)

__ Catch-22 for Home Care for Ventilator Assisted Children (Vol. 1, No. 2) (not online)

Chronic obstructive pulmonary disease (COPD)

__ Noninvasive Positive Pressure Ventilation (NPPV) for People with COPD: A New Group of Ventilator Users? (Vol. 13, No. 2)

Communication

__ Letter to the Editor (Vol. 18, No. 2)

__ Passy-Muir Speaking Valve: Improving Voice in Children and So Much More (Vol. 18, No. 1)
How the Passy-Muir Valve Works

__ Let's Hear It for Free Speech! (Vol. 13, No. 1)

__ Speak to Me ... Better (Vol. 12, No. 4) (not online)

__ Tracheal Toilet and Speech (Vol. 10, No. 1) (not online)

__ The Tracheotomized Patient: Tracheal Toilet and Speech (Vol. 9, No. 2) (not online)

__ Communication for the Ventilator User with a Tracheostomy (Vol. 7, No. 1)

COPD (see Chronic obstructive pulmonary disease)

__ Noninvasive Positive Pressure Ventilation (NPPV) for People with COPD: A New Group of Ventilator Users? (Vol. 13, No. 2)

Cough

__ Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise (Vol. 16, No. 1)

__ Post-Polio, Swallowing, and Cough (Vol. 15, No. 3) (not online)

__ Assisted Cough: Benefits and Techniques (Vol. 12, No. 1)

__ Monitoring Respiratory Function (Vol. 11, No. 2) (not online)

__ Suggestions for Avoiding Respiratory Complications (Vol. 9, No. 2)

__ Improving Cough and Decreasing Infection (Vol. 8, No. 2) (not online)

__ The Cof-flator Revisited (Vol. 7, No. 1)

Denmark

__ Forum on Home Mechanical Ventilation: The Danish Experience (Vol. 11, No. 2) (not online)

__ Danish Observations about American Ventilator Users (Vol. 10, No. 1) (not online)

__ New Danish Custom Nasal Mask (Vol. 10, No. 1) (not online)

__ Respirator Use in Denmark (Vol. 6, No. 2) (not online)

Dental work

__ CCHS: Are Nasal Masks Affecting Facial and Bite Alignment? (Vol. 13, No. 4) (not online)

__ Dentist Visits (Vol. 6, No. 2)

Diaphragmatic pacing

__ From Around the Network (Vol. 22, No. 3)

__ Letter to the Editor: DPS System Article Clarified (Vol. 20, No. 4)

__ The Latest Facts about the Diaphragm Pacing Stimulation (DPS) System (Vol. 20, No. 3)

__ Phrenic Nerve Pacing (Vol. 17, No. 1)

__ New Diaphragm Pacing System (Vol. 15, No. 2)

__ Phrenic Nerve Pacing (Vol. 13, No. 1)

__ Changing Equipment as Diagnoses Change – Congenital Central Hypoventilation Syndrome,
Muscular Dystrophy, Spinal Cord Injury, Diaphragm Pacing (Vol. 8, No. 2)