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What's New
Selected articles from the summer issue of Ventilator-Assisted Living (Vol. 22, No. 2) are now online.
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EDUCATION
- Ventilator-Assisted Living
Past Issues, Listed by Topic
Past Issues, Listed by Date - Information about Ventilator-Assisted Living
- Home Ventilator Guide
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Past Issues (listed by topic)
of Ventilator-Assisted Living©
ISSN 1066-534X (formerly IVUN News)
Past issues from 1998-2007 (Vol. 12-21) are available for $1.25 per issue. Contact us at 314-534-0475 or info@ventusers.org for more information on ordering individual issues.
A complete set of all issues from 1998-2007 (Vols. 12-21)
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Acid maltase deficiency
Living with Pompe's Disease (Vol. 10, No. 2)
Living with Acid Maltase Deficiency (Vol. 10, No. 2)
Luke's Progress (Vol. 17, No. 1)
Adolescence
Home Care for Ventilator-Assisted Children and Adolescents:
A 15-year personal perspective (Vol. 4, No. 1) (not online)
Home Ventilation in Children & Adolescents (Vol. 4, No. 1) (not online)
Supreme Court Rules in Favor of Teen Ventilator User (Vol. 13, No. 1) (not online)
Adolescence: Transitioning from Pediatric to Adult Care (Vol. 17, No. 2)
Life as a Teenager ... with a Ventilator (Vol. 19, No. 1)
Advocacy
IVUN's New Medical Advisory Committee Shares Its Views (Vol. 20, No. 2)
Renting your vent? What would you do if you suddenly owned it? (Vol. 21, No. 3)
Aging
Aging with a Ventilator: Independence or Security (Vol. 15, No. 4)
Ventilator Users, Assisted Living, and Nursing Homes (Vol. 16, No. 1)
Aging and Respiratory Function (Vol. 18, No. 1)
Transition: From Middle Age to Elderly (Vol. 18, No. 1)
Airway clearance
Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise (Vol. 16, No. 1)
Amyotrophic lateral sclerosis (ALS)
Thoughts on ALS and Ventilators (Vol. 3, No.1) (not online)
Breathing Failure in ALS and Handling Emergencies (Vol. 4, No. 2) (not online)
Mobility and ALS (Vol. 7, No. 1) (not online)
Choosing Life, Even on a Ventilator (Vol. 10, No. 2)
ALS Update/Jim Ballard (Vol. 12, No. 4)
A Happy Anniversary (Vol. 12, No. 4)
ALS Pulmonary Protocol (Vol. 14, No. 3)
My Experience with Noninvasive Ventilation (Vol. 16, No. 4)
Quality of Life: Profiles of Living with ALS (Vol. 18, No. 2)
PHI Grant Awarded to Johns Hopkins Team to Study Early Use of
Noninvasive Ventilation (Vol. 18, No. 4)
ALS Potpourri (Vol. 19, No. 1)
Living with ALS (Vol. 20, No. 2)
The Research Fund/Final Report: Timing of Noninvasive Ventilation for Patients with Amyotrophic Lateral Sclerosis (Vol. 20, No. 4)
Anesthesia (see Surgery)
Assisted living/Nursing homes
Assisted Living for Ventilator Users (Vol. 13, No. 4) (not online)
Ventilator Users, Assisted Living, and Nursing Homes (Vol. 16, No. 1) (not online)
Home or Institution? (Vol. 17, No. 1) (not online)
Assisted Living for Ventilator Users (Vol. 17, No. 4)
Attendant care
Emergency Respite Care (Vol. 20, No. 1)
Maximizing Your Support and Independence through Attendant Care (Vol. 20, No. 2)
Request for Increased Funding for Veterans Using Home Ventilators (Vol. 20, No. 3)
Australia
Long-Term Mechanical Ventilation in Australia (Vol. 3, No. 3) (not online)
Australian Paediatric Ventilator Program (Vol. 14, No. 3) (not online)
Bi-level pressure support systems
Adapting to Masks and BiPAP® (Vol. 11, No. 2)
Ventilators and Bi-Level Pressure Devices (Vol. 12, No. 2)
Which Ventilator to Use? (Vol. 12, No. 2)
Conversions: Pressure-Limited to Volume Ventilator (Vol. 12, No. 3) (not online)
Congestive Heart Failure, OSA, and BiPAP (Vol. 16, No. 2)
Managing Noninvasive Ventilation: A Portuguese Experience (Vol. 16, No. 4)
My Experience with Noninvasive Ventilation (Vol. 16, No. 4)
Getting Used to Noninvasive Bilevel Pressure Ventilation (Vol. 17, No. 2)
Happily Using Bilevel Pressure Ventilation (Vol. 17, No. 2) (not online)
Update: Medicare Reimbursement Changes Affect Vent Users (Vol. 21, No. 1)
Body brace
BPD (see Bronchopulmonary dysplasia)
Brazil
Home Mechanical Ventilation: A Brazilian Experience (Vol. 15, No. 4) (not online)
Home Mechanical Ventilation in Brazil Revisited (Vol. 18, No. 2)
Breathing (see Hypoventilation)
Bronchopulmonary dysplasia (BPD)
Ventilator-Assisted Infants with Bronchopulmonary Dysplasia (Vol. 8, No. 1) (not online)
Camping/Camps
Camping with a Ventilator (Vol. 15, No. 2) (not online)
Fresh Air Camp (Vol. 15, No. 4) (not online)
Vent Kids of Alabama Support Group (Vol. 18, No. 3)
A Treehouse for Everyone (Vol. 19, No. 1)
Pennsylvania Vent Camp at Camp Victory (Vol. 20, No. 4)
Canada
Ontario's Ventilator Equipment Pool (Vol. 14, No. 2) (not online)
Pearson's Respiratory Outreach Program Moves into Community (Vol. 15, No. 4) (not online)
Caregivers
Quality of Life Perceptions of Ventilator-Assisted Individuals (Vol. 4, No. 1)
Demands of Caregiving for Home-Based Ventilator-Assisted Individuals:
A Preliminary Report (Vol. 8, No. 2) (not online)
Development of RespiteMatch.com (Vol. 19, No. 1)
Emergency Respite Care (Vol. 20, No. 1)
Maximizing Your Support and Independence through Attendant Care (Vol. 20, No. 2)
Request for Increased Funding for Veterans Using Home Ventilators (Vol. 20, No. 3)
Central Congenital Hypoventilation Syndrome (CCHS)
Congenital Central Hypoventilation Syndrome: A Family Profile (Vol. 6, No. 2) (not online)
CCHS Networking: How It Began (Vol. 7, No. 2) (not online)
CCHS Conference (Vol. 8, No. 1) (not online)
Changing Equipment as Diagnoses Change (Vol. 8, No. 2) (not online)
Congenital Central Hypoventilation Syndrome (Vol. 8, No. 2) (not online)
CCHS Data (Vol. 10, No. 2) (not online)
CCHS Registry (Vol. 11, No. 2) (not online)
CCHS Update: Matt Stone (Vol. 11, No. 2) (not online)
CCHS: Are Nasal Masks Affecting Facial and Bite Alignment? (Vol. 13, No. 4) (not online)
Charcot-Marie-Tooth
Charcot-Marie-Tooth: A "Breath Taking" Reality (Vol. 16, No. 3) (not online)
Children
Catch-22 for Home Care for Ventilator Assisted Children (Vol. 1, No. 2) (not online)
Erin's Story: Yes, You Can Outgrow the Need for a Ventilator! (Vol. 3, No. 1) (not online)
Home Care for Ventilator-Assisted Children and Adolescents:
A 15-year personal perspective (Vol. 4, No. 1) (not online)
Home Ventilation in Children & Adolescents (Vol. 4, No. 1) (not online)
Children as Ventilator Users: Obstacles to Discharge for Ventilator-Assisted Children (Vol. 7, No. 2) (not online)
CCHS Networking: How It Began (Vol. 7, No. 2) (not online)
Issues and Challenges of a Technology-Dependent Child (Vol. 7, No. 2) (not online)
CCHS Conference (Vol. 8, No. 1) (not online)
Ventilator-Assisted Infants with Bronchopulmonary Dysplasia (Vol. 8, No. 1) (not online)
Traveling with a Child with a Trach (Vol. 8, No. 1) (not online)
Changing Equipment as Diagnoses Change – Congenital Central Hypoventilation Syndrome, Muscular Dystrophy, Spinal Cord Injury, Diaphragm Pacing (Vol. 8, No. 2) (one is online)
Living at Home: Overcoming Obstacles – Pediatric Issues (Vol. 8, No. 2) (not online)
Children and Teens as Ventilator Users (Vol. 9, No. 1) (not online)
Passy-Muir Valve Helps Wean from Tracheostomy (Vol. 10, No. 1) (not online)
From the Desk of David-Ecker-Russ (Vol. 12, No. 1) (not online)
Longterm Ventilation for Children in the United Kingdom (Vol. 12, No. 3) (not online)
An Israeli Experience (Vol. 12, No. 4)
The Baku Baku Club: Education and Ventilator-Assisted Children in Japan; Saki's Story (Vol. 12, No. 4) (not online)
A Family Home, Not a Nursing Home (Vol. 13, No. 2)
Paediatric Home Ventilation in the United Kingdom (Vol. 13, No. 4) (not online)
Home Care and Mechanical Ventilation for Children in Thailand (Vol. 14, No. 1)
IDEA: Individuals with Disabilities Education Act (Vol. 14, No. 2) (not online)
Australian Paediatric Ventilator Program (Vol. 14, No. 3) (not online)
Improving Quality of Life (Vol. 14, No. 4)
Assistance Dogs for Children with CCHS (Vol. 15, No. 1) (not online)
The Polish National Center for Home Mechanical Ventilation in Children (Vol. 15, No. 3)
Pediatric Noninvasive Ventilation (Vol. 15, No. 3)
German Pediatric Masks (Vol. 15, No. 3)
Fresh Air Camp (Vol. 15, No. 4) (not online)
Living with SMA in Hong Kong (Vol. 16, No. 1) (not online)
Long-Term Ventilation: The Jerusalem Experience (Vol. 16, No. 2)
Adolescence: Transitioning from Pediatric to Adult Care (Vol. 17, No. 2)
Traveling with Technology-Assisted Children (Vol. 17, No. 3)
Arizona Respiratory Center Receives Grant (Vol. 18, No. 1)
Passy-Muir Speaking Valve: Improving Voice in Children and So Much More (Vol. 18, No. 1)
Home Mechanical Ventilation in Brazil Revisited (Vol. 18, No. 2)
Vent Kids of Alabama Support Group (Vol. 18, No. 3)
Home Care for Children in Holland (Vol. 18, No. 4)
A Treehouse for Everyone (Vol. 19, No. 1)
The Experiences of Families with Ventilator-Assisted Children at Home (Vol. 19, No. 2)
Swedish Respiratory Unit for Ventilator-Assisted Children (Vol. 19, No. 3)
Pennsylvania Vent Camp at Camp Victory (Vol. 20, No. 4)
2007 Camps for Ventilator-Assisted Children (Vol. 21, No. 1)
Chronic obstructive pulmonary disease (COPD)
Noninvasive Positive Pressure Ventilation (NPPV) for People with COPD: A New Group of Ventilator Users? (Vol. 13, No. 2)
Communication
Communication for the Ventilator User with a Tracheostomy (Vol. 7, No. 1)
The Tracheotomized Patient: Tracheal Toilet and Speech (Vol. 9, No. 2) (not online)
Tracheal Toilet and Speech (Vol. 10, No. 1) (not online)
Speak to Me ... Better (Vol. 12, No. 4) (not online)
Let's Hear It for Free Speech! (Vol. 13, No. 1)
Passy-Muir Speaking Valve: Improving Voice in Children and So Much More (Vol. 18, No. 1)
How the Passy-Muir Valve Works
Letter to the Editor (Vol. 18, No. 2)
COPD (see Chronic obstructive pulmonary disease)
Noninvasive Positive Pressure Ventilation (NPPV) for People with COPD: A New Group of Ventilator Users? (Vol. 13, No. 2)
Cough
The Cof-flator Revisited (Vol. 7, No. 1)
Improving Cough and Decreasing Infection (Vol. 8, No. 2)
Suggestions for Avoiding Respiratory Complications (Vol. 9, No. 2)
Monitoring Respiratory Function (Vol. 11, No. 2)
Assisted Cough: Benefits and Techniques (Vol. 12, No. 1)
Post-Polio, Swallowing, and Cough (Vol. 15, No. 3)
Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise (Vol. 16, No. 1)
Denmark
Respirator Use in Denmark (Vol. 6, No. 2)
New Danish Custom Nasal Mask (Vol. 10, No. 1)
Danish Observations about American Ventilator Users (Vol. 10, No. 1)
Forum on Home Mechanical Ventilation: The Danish Experience (Vol. 11, No. 2)
Dental work
Dentist Visits (Vol. 6, No. 2)
CCHS: Are Nasal Masks Affecting Facial and Bite Alignment? (Vol. 13, No. 4)
Diaphragmatic pacing
Changing Equipment as Diagnoses Change – Congenital Central Hypoventilation Syndrome,
Muscular Dystrophy, Spinal Cord Injury, Diaphragm Pacing (Vol. 8, No. 2)
Phrenic Nerve Pacing (Vol. 13, No. 1)
New Diaphragm Pacing System (Vol. 15, No. 2)
Phrenic Nerve Pacing (Vol. 17, No. 1)
The Latest Facts about the Diaphragm Pacing Stimulation (DPS) System (Vol. 20, No. 3)
Letter to the Editor: DPS System Article Clarified (Vol. 20, No. 4)
Dogs, assistance
Assistance Dogs for Children with CCHS (Vol. 15, No. 1)
Ninth International Noninvasive Ventilation Conference:
"From the ICU to Home," October 2003, Orlando, Florida (Vol. 17, No. 4)
Education
Schools and Programs for Pediatric Ventilator Users (Vol. 10, No. 2)
IDEA: Individuals with Disabilities Education Act (Vol. 14, No. 2)
Living on Your Own in College and Beyond (Vol. 19, No. 2)
England
On Holiday at Netley Waterside House (Vol. 10, No. 1)
Long-term Ventilation for Children in the United Kingdom (Vol. 12, No. 3)
Paediatric Home Ventilation in the United Kingdom (Vol. 13, No. 4)
Equipment exchange
IVUN Ventilatory Equipment Exchange (Vol. 18, No. 1)
IVUN Equipment Exchange: PLV-100s Donated (Vol. 19, No. 1)
Fiberoptic intubation
What Is Fiberoptic Intubation? (Vol. 14, No. 4)
Finland
Finland: Ventilator Use (Vol. 9, No. 1)
Home Mechanical Ventilation in Finland (Vol. 14, No. 4)
France
Living at Home: Overcoming Obstacles – Pediatric Issues, France and
Long-term Ventilation (Vol. 8, No. 2)
Ventilator Conference in Lyon (Vol. 19, No. 2)
Frog breathing
GPB for High Level Quads (Vol. 1, No. 2) (not online)
Frog Breathing: Still Useful, Still Lifesaving (Vol. 10, No. 1)
Potpourri: Frog Breathing with Gary McPherson video (Vol. 11, No. 2)
Frog breathing (Vol. 13, No. 2)
Heart problems
Congestive Heart Failure, OSA, and BiPAP (Vol. 16, No. 2)
Home care programs
Home Mechanical Ventilation: Obstacles to Living at Home (Vol. 8, No. 2)
Consumer-Directed Home Care Program Saved from New York Budget Ax and Expanded (Vol. 9, No. 2)
New York's Consumer-Directed Home Care Program: Chapter 2 (Vol. 10, No. 1)
Hong Kong
Living with SMA in Hong Kong (Vol. 16, No. 1)
Humidification
Humidification (Vol. 17, No. 1)
Treating Bronchitis with H2O (Vol. 17, No. 1)
Hypoventilation
Underventilation (Vol. 2, No. 2) (not online)
What Is Hypoventilation? (Vol. 17, No. 1)
A Classic Case of Hypoventilation (Vol. 17, No. 1)
Hypoventilation? Obstructive Sleep Apnea? Different Tests, Different Treatment (Vol. 19, No. 3)
IDEA
IDEA: Individuals with Disabilities Education Act (Vol. 14, No. 2)
Inspiratory muscle training
Respiratory Study with SCI Ventilator Users (Vol. 15, No. 1)
Update: Inspiratory Muscle Training Study (Vol. 15, No. 2)
Ireland
Noninvasive Ventilation: A History of My Life (Vol. 17, No. 4)
Iron lungs
The Iron Lung: A User's Guide (Vol. 2, No. 1) (not online)
Life after Lung (Vol. 2, No. 1) (not online)
John H. Emerson and the Iron Lung (Vol. 11, No. 1)
Conversion: Iron Lung to Porta-Lung™ (Vol. 12, No. 3)
Respironics Colorado Announces Discontinuation of Service and Repair Support for Certain Ventilation Equipment (Vol. 18, No. 1)
IVUN Ventilatory Equipment Exchange (Vol. 18, No. 1)
Israel
An Israeli Experience (Vol. 12, No. 4)
Long-Term Ventilation: The Jerusalem Experience (Vol. 16, No. 2)
Italy
Italian Ventilator User Survey (Vol. 15, No. 2)
Japan
Ventilator Use in Japan (Vol. 6, No. 1)
Spring Has Come (Vol. 6, No. 1)
Forum on Home Mechanical Ventilation: The Japanese Experience (Vol. 11, No. 2)
The Baku Baku Club: Education and Ventilator-Assisted Children in Japan (Vol. 12, No. 4)
Saki's Story (Vol. 12, No. 4)
Japanese Ventilator Users Network's Successful Symposia (Vol. 18, No. 3)
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