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What's New
Selected articles from the summer issue of Ventilator-Assisted Living (Vol. 22, No. 2) are now online.
August Membership renewal notices have been mailed. Not a Member?
Join IVUN.
EDUCATION
- Ventilator-Assisted Living
Past Issues, Listed by Topic
Past Issues, Listed by Date - Information about Ventilator-Assisted Living
- Home Ventilator Guide
| The work of IVUN is sponsored in part by |
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| The work of IVUN is supported in part by |
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Want to be a sponsor? Contact director@post-polio.org.
Past Issues (listed by issue and date) of Ventilator-Assisted Living©
ISSN 1066-534X (formerly IVUN News)
©Copyright through 2007 Post-Polio Health International
Past issues from 1998-2007 (Vol. 12-21) are available for $1.25 per issue. Contact us at 314-534-0475 or info@ventusers.org for more information on ordering individual issues.
A complete set of all issues from 1998-2007 (Vols. 12-21)
is available for $40. Add $10 for international orders.
Download a PDF order form to print and
return by mail, or call 314-534-0475.
To view documents in PDF format, Adobe® Acrobat® Reader needs to be installed on your computer. Click here for a free download.
2007
Fall 2007, Vol. 21, No. 3
Renting your vent? What would you do if you suddenly owned it?
A ventilator user's impressions of a recent hmv meeting
Celebrating its 20th year, IVUN announces its new website
Summer 2007, Vol. 21, No. 2
Safety Issue Generates Practical Solutions
Social and Ethical Implications of Long-term Ventilation for Men with Muscular Dystrophy
Two survivors present solutions for addressing muscle respiratory weakness due to prior polio
Recent readers’ survey. A few things we learned
Spring 2007, Vol. 21, No. 1
How My Vent and I Underwent Radiation Therapy
Update: Medicare Reimbursement Changes Affect Vent Users
Independence with a Ventilator: An Interview with Mark Boatman
2007 Camps for Ventilator-Assisted Children; 2007 Conferences
Noninvasive and Home Mechanical Ventilation: ICU and Beyond
2006
Winter 2006, Vol. 20, No. 4
The Research Fund: Final Report
Timing of Noninvasive Ventilation for Patients with Amyotrophic Lateral Sclerosis
Pennsylvania Vent Camp at Camp Victory
IVUN Joins Those Studying Sexual Activity and Chronic Illness
Networking: DPS System Article Clarified
IVUN's 2007 Resource Directory for Ventilator-Assisted Living is now online
Fall 2006, Vol. 20, No. 3
The Latest Facts about the Diaphragm Pacing Stimulation (DPS) System
IVUN Members Consider Telehealth
Request for Increased Funding for Veterans Using Home Ventilators
IVUN Membership Benefits and Form; Get Ready for Another Flu Season
Summer 2006, Vol. 20, No. 2
Maximizing Your Support and Independence through Attendant Care
IVUN's New Medical Advisory Committee Shares Its Views
Enjoying the Arts: Expect the Unexpected
Update on the Ventilator Users' Medical Emergency (VUME) Project
Networking: Ventilator Donation to Thai Hospital; Registries; Calendar 2006
Reminder: The Research Fund Proposal Deadline
Spring 2006, Vol. 20, No. 1
Escaping Hurricanes Katrina and Rita
Medicare Changes Payment for RADs
Ventilator Users' Medical Emergency (VUME) Project Under Way
An Alternative to a Trach Tube
New Equipment: ComfortLite™ 2 Nasal Mask; DC to DC Power Source for Pulmonetic Systems Ventilators
2005
Winter 2005, Vol. 19, No. 4
Adopting Children with Special Needs
Current Threats to Ventilator Users in Cost-Cutting Proposals from Medicaid and Other Medical Insurance: A Resolution
Funds to Address Problems Vent Users Face during Medical Emergencies
Call for Proposals for a 2007 Award of $25,000 (The Research Fund)
The Research Fund: Preliminary Report
Earlier Use of Noninvasive Ventilation May Prolong Survival
New Masks
Home Ventilator Guide
Fischer Steps Down
In Memoriam: Edward Anthony "Tony" Oppenheimer, MD, FCCP
Fall 2005, Vol. 19, No. 3
Hypoventilation? Obstructive Sleep Apnea? Different Tests, Different Treatment
Swedish Respiratory Unit for Ventilator-Assisted Children
Masks, Part II: Noninvasive Interfaces
Equipment: PLV Continuum by Respironics, Inc.
Travel: Special Federal Aviation Regulation (SFAR)
Summer 2005, Vol. 19, No. 2
Living on Your Own in College and Beyond
The Experiences of Families with Ventilator-Assisted Children at Home
Masks: Obtaining a Good Fit, Part I
Equipment and Interfaces
Spring 2005, Vol. 19, No. 1
2005 Camps for Ventilator-Assisted Children
Extra Security During Emergencies
Life as a Teenager ... with a Ventilator
The Development of RespiteMatch.com
Potpourri: Amyotrophic Lateral Sclerosis; Muscular Dystrophy; Polio; Spinal Muscular Atrophy
IVUN Equipment Exchange: PLV-100s Donated
An Oral Mask Alternative: The Oracle
2004
Winter 2004, Vol. 18, No. 4
The Ventilator Boat: Will It Float?
PHI Grant Awarded to Johns Hopkins Team to Study Early Use of Noninvasive Ventilation
The Pneumobelt: Part of My Noninvasive Ventilation System
Planning for Elective Surgery
Home Care for Children in Holland: The Story of Anouk
Potpourri: John J. Downes, MD, FCCP; Over 5 Years Club; Virginia Nelson, MD; CILB (Citizens for Independence in Living and Breathing); Paul Longmore, PhD
Strategies for Living Well: Ninth International Conference on Post-Polio Health and Ventilator-Assisted Living
New Interfaces: Nasal Pillows
New Equipment
Fall 2004, Vol. 18, No. 3
Vent Kids of Alabama Support Group
Sidebar: "Care of the child with a chronic tracheostomy"
From independent living to a nursing home ... and back?
Sidebar: Respiratory care and Duchenne muscular dystrophy
Ventilator Users in the Air: Traveling to Japan
Japanese Ventilator Users Network's Successful Symposia
New Interfaces: Nasal Pillows
New Equipment
Summer 2004, Vol. 18, No. 2
Quality of Life: Profiles of Living with ALS
Sidebars:
What is ALS?
More about ALS
Home Mechanical Ventilation in Brazil Revisited
Homebound Exception Demonstration
Retrofitting Ventilators for Power Chairs
Preparing for a Respiratory Emergency
In Memoriam: Ira Holland, 1939-2004
Respironics and IVUN's Ventilatory Equipment Exchange
Potpourri: ResLink from ResMed; OSA/CPAP users; Medicaid Waivers; Toll-Free Hotline for Airline Disability-Related Problems; The Association for Respiratory Technicians and Physiologists; Chin-Neck Bandage; Rolling On: The Story of the Amazing Gary McPherson
Letter to the Editor from Jeannette Hoitt, PhD and Robert Banzett, PhD, University of Arizona
Spring 2004, Vol. 18, No. 1
Passy-Muir Speaking Valve: Improving Voice in Children and So Much More
Sidebar: How the Passy-Muir Valve Works
Ventilator Backup: Are You Prepared?
Aging and Respiratory Function
Transition: From Middle Age to Elderly
Arizona Respiratory Center Receives Grant
ALS Respiratory Care Resources
IVUN Ventilatory Equipment Exchange
New Interface: The ComfortLite from Respironics
2004 Camps for Ventilator-Assisted Children
2003
Winter 2003, Vol. 17, No. 4
Respiratory Effects of Common Medications
Noninvasive Ventilation: A History of My Life
Ninth International Noninvasive Ventilation Conference: "From the ICU to Home," October 23-25, 2003, Orlando, Florida
Intimacy and Sexuality and Long-term Mechanical Ventilation: Breathing Intimacy into Our Lives
Assisted Living for Ventilator Users
Sidebars: No More Inner Cannulas, Talking with Tracheostomy Ventilation
New Nasal Masks: Mirage Activa, ComfortGel, DeVilbiss FlexAire, Fisher & Paykel's HC405
Fall 2003, Vol. 17, No. 3
Noninvasive to Trach Ventilation ... and Back Again
Traveling with Technology-Assisted Children
Air Travel and Ventilator Users
Journal Articles
New Equipment & Interfaces: Nippy 3; ComfortFull Full Face Mask, V.I.P. 7500 Series Oro-Nasal Vmask, ALIZES nasal CPAP/bilevel mask
Trach Necklaces and Scarves
Summer 2003, Vol. 17, No. 2
Welcome to Ventilator-Assisted Living
Getting Used to Noninvasive Bilevel Pressure Ventilation
Adolescence: Transitioning from Pediatric to Adult Care
DMD Pioneers
Happily Using Bilevel Pressure Ventilation
Home Mechanical Ventilation in the Netherlands
Potpourri: Equipment Problems; Living with ALS
Letters to the Editor
Spring 2003, Vol. 17, No. 1
A Classic Case of Hypoventilation
Which Ventilator? Who Decides?
Home or Institution?
Reimbursement for Ventilator Equipment: How It Works
Phrenic Nerve Pacing
Advocacy/Policy Websites
Ninth International Conference on Noninvasive Ventilation: "From the ICU to Home"
Journal Articles
Calendar 2003
In Memoriam
The Research Fund
Potpourri: ALS Sanctuary; ALS caregiver's guide; Kaleidoscope; Non-Invasive Respiratory Support guide; DMD Pioneers
2002
Winter 2002, Vol. 16, No. 4
Managing Noninvasive Ventilation: A Portuguese Experience
My Experience with Noninvasive Ventilation
Interfaces, Ventilators, and Supplies
Fall 2002, Vol. 16, No. 3
On the Road with the Newport HT50 Ventilator
Home Mechanical Ventilation in Taiwan
Charcot-Marie-Tooth: A "Breath Taking" Reality
Homebound Restriction Eased
Potpourri: MDA Clinical-Research Chat on Respiratory-Ventilation Issues; Noninvasive Ventilation by John Bach; MiCASSA
Summer 2002, Vol. 16, No. 2
Long-Term Ventilation: The Jerusalem Experience
David Jayne Goes to Washington
Congestive Heart Failure, OSA, and BiPAP
Medicaid and People with Disabilities: Living in the Community
New Interfaces
Equipment News
Potpourri: Direct Relief International; Old Respiratory Equipment; The Bryan Pratt Autobiography; Letters of Medical Necessity
Spring 2002, Vol. 16, No. 1
Living with SMA in Hong Kong
Ventilator Users and Health-Related Quality of Life
Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise
NCAHB Update
More on Sleep Studies
Ventilator Users, Assisted Living, and Nursing Homes
Potpourri: Traveling with a Ventilator Post September 11; The Virtual Museum of the Iron Lung; Muscular Dystrophy Epidemiology at the CDC
2002 Camps for Ventilator-Assisted Children